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Summary Report National Forum on the FASD Diagnostic Guidelines

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Appendix 1: Agenda

Day One - March 8, 2005

9:00	Welcome and Opening Remarks; Introductions
9:30	Background to the Forum
9:45	Development of the Diagnostic Guidelines
10:15	Overview of the Guidelines
10:45	Refreshments
11:00	Small Discussion Groups
11:45	Insights from Discussion
12:00	Lunch (provided)
1:00	Overview of Current Training Initiatives
1:45	Reaction/Comments
2:00	Small Discussion Groups - Generating Ideas for a National Training Plan
3:30	Group Reports on Training Ideas
4:00	Summary of Day One
4:30	Adjourn

Day Two - March 9, 2005

9:00	Debrief of Day One and Overview of Day Two
9:10	Current Data Collection and Monitoring Systems
9:45	Data Collection Discussion
10:30	Refreshments
10:45	Priorities for Data Collection and Monitoring System
11:45	Insights from Discussion
12:00	Lunch (provided)
1:00	Public Health Agency of Canada (PHAC) Remarks
1:15	Priority-setting Exercise - Small Groups
1:30	Present List of Priorities to Large Group
2:00	Discussion/Clarification of Priorities
2:30	Individual Ranking of Priorities
2:45	Refreshments
3:00	Presentation and Discussion of Group Priorities
4:00	Closing Remarks
4:15	Adjourn

Appendix 2: Invitation and Participant Lists

Invitation List

Name
1. Sally Longstaffe	2. Christine Loock
3. Ted Rosales	4. Albert Chudley
5. Claudine Longboat-White	6. Nicole Leblanc
7. Gina Muckle	8. Ted Rosales
9. Gideotte Koren	10. Valerie Flynn (Ottawa)
11. Claudette Landry	12. Margaret Clarke
13. Leigh Wincott	14. Hasu Rajani
15. Mary Cox Millar	16. Sterling K. Clarren
17. Dan Dubovsky	18. Deborah Pace
19. Denise Stone	20. Linda L. Storoz
21. Julie Conry	22. Liz Lawryk
23. Darren Joslin	24. Heidi Schroter
25. Michelle Dubik	26. Wendy Burgoyne
27. Ginny Lane	28. Dolores Logan
29. Winnie Banfield	30. Lindsay Crowshoe
31. Roxanne Manning	32. Selma Ford
33. Sherri Wilson	34. Mary Ellen Turpel Lafond
35. Andrea Noonan	36. Dawn Bruyere
37. Brad Bell	38. Kent Saylor
39. Marie Adele Davis	40. Sarah Shea
41. Joachim Kapalanga	42. Francine Knoops
43. K.O. Asante	44. Elaine Orrbine
45. Anne Fuller	46. Vyta Senikas
47. Gail Andrew	48. John Service
49. Maureen O'Donnell	50. Arthur Blue
51. Dawn Ridd	52. Nikki Bansil
53. Peter Noonan	54. Naho
55. Soo-Hong Uh	56. Jo Nanson
57. Nicole Chatel	58. Louise Floyd
59. Johannes Botha	60. Carol Woodworth
61. Lori Vitale-Cox	62. Rachelle Best
63. Barb Benton	64. Bryce Larke
65. Stacy Taylor	66. Mercedes Mompel
67. Mary Lynch	68. Catherine Royle
69. Darlene Oakes	70. Colleen Greene
71. Valerie Massey (no fax)	72. Nancy Taylor
73. Lindsay Crowshoe (no fax)	74. Kathy Inkpen
75. William Vitale (no fax)	76. Denise Stone
77. Diane Boswall	78. Sandy Steinwender
79. Marie-Claude Paquette	80. Sonia Morin
81. Diane Fast

PARTICIPANT NAME	ADDRESS
ANDREW, Dr. Gail Physician	Glenrose Rehab Hospital 10230-111 Avenue Edmonton, Alberta T5G 0B7
ASANTE, Physician	Dr. Kwadwo Asante Centre for FAS 322722 Lougheed High Way Maple Ridge, British Columbia V2X 2V6 Asante Centre 22326(A) McIntosh Avenue Maple Ridge, British Columbia V2X 3C1
BAMBRICK, Tammy Senior Policy Analyst	Public Health Agency of Canada FASD Team Tunney's Pasture Ottawa, ON K1A 0K9
BANFIELD, Winnie FASD/ECD Program Coordinator	Nunavut Health and Social Services Population and Public Health Division P.O. Box 100, Station 1000 Iqaluit, Nunavut X0A 0H0
BEATON, Barb Program Development Officer	Department of Health and Social Services 6th Floor, Centre Square Tower Children's Programs Box 1320 ECD, Family Support Yellowknife, Northwest Territories X1A 2L9
BELL, Brad Manager	Early Childhood and Prevention 9010 Quartz Road P.O. Box 2703 Whitehorse, Yukon YlA 2C6
BEST, Rachelle Coordinator, Diagnostic and Support Team	Child Development Centre Box 2703 Whitehorse, Yukon YlA 2C6
BOTHA, Dr. Johannes Family Physician	Lakeland Centre for FASD Box 381 Redwater, Alberta T0A 2OV
BRUYERE, Dawn Aboriginal Nurses Association	56 Sparks Street Suite 502 Ottawa, Ontario K1P 5A9
CHATEL, Nicole Pediatrician	Stanton Territorial Health Authority Stanton Medical Clinic 550 Byrne Road P.O. Box 10 Yellowknife, Northwest Territories X1A 2N1
CHUDLEY, Dr. Albert Head of the Section of Genetics and Metabolism	Winnipeg Children's Hospital FE 229-820 Sherbrooke Street Winnipeg, Manitoba R3A 1R9
CONRY, Dr. Julianne Psychologist	Asante Centre for FAS 3060 St. Andrews Avenue North Vancouver, British Columbia V7N 1Z6
COOK, Dr. Jocelynn	Public Health Agency of Canada FASD Team Tunney's Pasture Ottawa, ON K1A 0K9
COX, Lori Vitale Psychologist	Education Division of Elsipogtog First Nations 342 Big Cove Road Elsipogtog First Nations, New Brunswick E4W 2S3
DUBIK, Michelle FAS Community Program Coordinator	Healthy Child Manitoba 219-114 Garry Street Winnipeg Manitoba R3C 4V6
DUBOVSKY, Dan FAS Specialist, SAMHSA	FAS Centre of Excellence 2101 Gaither Road Suite 600 Rockville, Maryland 20850
FAST, Dr. Diane Psychiatrist	BC Women's and Children's Hospital 4480 Oak Street Vancouver, British Columbia V6H 3N1
FLYNN, Valerie	FNIHB FASD Team Tunney's Pasture Ottawa, Ontario K1A 0K9
FORD, Selma Director of Health	Inuit Tapiriit Kanatami 170 Laurier Street West Suite 510 Ottawa, Ontario K1P 5V5
JOSLIN, Darren Manager	Alberta Children Services Strategic Initiatives 5th Floor, Sterling Place 9940 -106 Street Edmonton, Alberta T5K 2N2
KAPALANGA, Dr. Joe Physician	Summerside Medical Centre 475 Granville Street North Summerside, Prince Edward Island C1N 3N9
KOREN, Dr. Gideon Physician	The Hospital for Sick Children 84 Lynn Haven Road Toronto, Ontario M6A 2K9
LANDRY, Claudette Project Manager, Public Health	Early Childhood Initiatives Department of Health and Wellness P.O. Box 5100 Fredericton, New Brunswick E3B 5G8
LANE, Ginny Consultant/Research - FASD	HEPSUA - Program Support Unit A 1st Floor, 3475 Albert Street Regina, Saskatchewan S4S 6X6
LAWRYK, Liz Chief Clinical Examiner	OBD Triage Institute P.O. Box 1289 Bragg Creek, Alberta T0L 0K0
LOGAN, Dr. Dolores	Regina Community Clinic 1106 Winnipeg Street Regina, Saskatchewan S4R 1J6
LONGBOAT-WHITE, Claudine	Kenora Area Health Access Centre Box 320 Keewatin, Ontario P0X 1C0
LOOCK, Dr. Christine	Sunny Hill Hospital 3644 Slocan Street Vancouver, British Columbia V5M 3E8
LYNCH, Mary BSW, RSW Early Childhood Social Worker	Family and Community Services 3 Wynn Street Rothesay, New Brunswick E2E 2B4
MANNING, Roxanne Coordinator, Prevention Services	Community Services P.O. Box 578 Halifax, Nova Scotia B3J 2S9
NAHO	56 Sparks Street Suite 400 Ottawa, Ontario K1P 5A9
NOONAN, Peter	Queen Elizabeth Hospital Paediatric Clinic P.O. Box 6600 Charlottetown, Prince Edward Island C1A 8T5
O'DONNELL, Dr. Maureen Consultant	Ministry of Health Services 7-1, 1515 Blanshard Street Victoria, British Columbia V8W3C8
RIDD, Dawn	Manitoba Healthy Living Healthy Population Unit 300 Carleton Street Room 2097 Winnipeg, Manitoba R3B 3M9
RIVET, Colette Director, Strategic Operations	Canadian Centre on Substance Abuse 75 Albert Street, Suite 300 Ottawa, ON K1P 5E7
ROSALES, Dr. Ted	P.O. Box 21005 St. John's, Newfoundland A1A 5B2
ROYLE, Catherine Program Consultant	Prenatal and Early Child Development Department of Health & Community Services P.O. Box 8700 St. John's, Newfoundland A1B 4J6
SMITH, Dr. R. Garth	Canada Paediatric Society 2204 Walkley Road Suite 100 Ottawa, Ontario K1G 4G8
STONE, Denise Acting Coordinator Special Needs Policy and Program Development	Early Childhood Development Services P.O. Box 578 Halifax, Nova Scotia B3J 2S9
TAYLOR, Nancy Co-ordinator, Pre-Primary Program	Department of Education P.O. Box 578 Halifax, Nova Scotia B3J 2S9
TAYLOR, Stacy RASD Resource and Support Services Coordinator	Moncton Headstart Inc. 111 Mountain Road Moncton, New Brunswick E1C 2S9
UH, Soo-Hong Consultant	Ministry of Health Services c/o Nayo Consulting 2985 Rutland Road Victoria, British Columbia V8R 3R5
WILSON, Sherri Consultant/Research - FASD	Alberta Health and Wellness 23rd Floor, Telus Plaza North Tower 10025 Jasper Avenue Edmonton, Alberta T5J 2N3
WINCOTT, Dr. Leigh Physician	Thompson Diagnostic Clinic for FAS 871 Thompson Drive South Thompson, Manitoba R8N 0C8
WOODWORTH, Carol Speech/Language Pathologist	Asante Centre for FAS 23000-116th Avenue Maple Ridge, British Columbia V2X 0T8

Appendix 3: Members of the NAC FASD Sub-Committee on Screening, Diagnosis and Training

Dr. Albert Chudley (Manitoba)
Dr. Julianne Conry (British Columbia)
Dr. Christine Loock (British Columbia)
Dr. Ted Rosales (Newfoundland)
Dr. Nicole Leblanc (New Brunswick)
Dr. Jocelynn Cook (Health Portfolio)

Appendix 4: List of Ranked Priorities

Priority and Rank

Disseminate guidelines and progress to professional and nonprofessional
groups.
Develop, establish, implement, evaluate and maintain standardized training.
Create and get funding.
Establish universal access to improve/maintain/sustain expertise in all
provinces/ territories/First Nations/Inuit/Métis.
Establish data collection concurrent with dissemination of Guidelines.
Link federal government Ministries/national organizations.
Establish national leadership to coordinate access, regulation and partnership.
Identify federal/national leadership and leaders in training (provincial).
Consult with First Nations/Inuit/Métis on guidelines, aftercare and reporting.
Ensure universal access to diagnosis.
Build on existing resources (clinics, non-FASD, perinatal).
Give presentations at appropriate conferences.
Obtain Ministry endorsement.
Create screening tools.
Establish better linking among professional organizations.
Develop or formalize a network among clinics.
Review and evaluate in one to two years.
Evaluate and monitor links to resources.

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