CCDPC Major Programs

The Canadian Childhood Cancer Surveillance and Control Program (CCCSCP)

Publications

Reports

	Diagnosis and Initial Treatment of Cancer in Canadian Adolescents 15 to 19 Years of Age, 1995-2000 This report provides information on Canadian adolescents diagnosed with cancer between 15 and 19 years of age from 1995 to 2000. Counts and rates of new cases from the Canadian Cancer Registry are presented, as well as descriptive statistics on patterns of initial diagnosis and treatment from the Canadian Childhood Cancer Surveillance and Control Program.
	Diagnosis and Initial Treatment of Cancer in Canadian Children 0 to 14 Years, 1995-2000 This report provides information on Canadian children diagnosed with cancer during the years 1995 to 2000 from the Treatment and Outcome Surveillance System, a component of the Canadian Childhood Cancer Surveillance and Control Program. The report includes incidence counts and rates, in addition to descriptive statistics on patterns of initial diagnosis and treatment. and unspecified malignant neoplasms.
	Measuring Up - A Health Surveillance Update on Canadian Children and Youth The aim of this report is to highlight the surveillance of a limited number of important health outcomes of Canadian children and youth. This surveillance update is presented according to the following categories: infant health, childhood cancer, vaccine-preventable diseases, respiratory health, child injury, and HIV and sexual health. Each section presents an overview of the topic, followed by the key surveillance indicators that demonstrate its impact on the overall health of Canadian children and youth.
	This Battle Which I Must Fight - Cancer in Canada's Children and Teenagers (1996) This book provides an overview of the information available and sets a benchmark for future childhood cancer control activities. It represents a collaboration among the Laboratory Centre for Disease Control in Health Canada and Canadian cancer registries, pediatric oncology centres and cancer authorities.

Peer-reviewed Publications

2007

Limburg H, Shaw AK, McBride M. Impact of childhood cancer on parental employment and income: A Canadian pilot study. (in press, Pediatric Blood and Cancer)

Barr RD, Greenberg ML, Shaw AK, Mery LM. The Canadian Childhood Cancer Surveillance and Control Program (CCCSCP): A Status Report. (in press, Pediatric Blood and Cancer)

Ellison LF, Pogany L, Mery LS. Childhood and adolescent cancer survival: A period analysis of data from the Canadian Cancer Registry. Eur J Cancer 2007; 43:1967-1975.

2006

Shaw AK, Li P, Infante-Rivard C. Early infection and risk of childhood brain tumours. Cancer Causes and Control 2006 December; 17 (10): 1267-1274.

Shaw AK, Li P, Infante-Rivard C. Early infection and risk of childhood brain tumours. Cancer Causes and Control

Klein-Geltink JE, Pogany L, Mery LS, Barr RD, Greenberg ML. Impact of age and diagnosis on waiting times between important health care events among children 0 to 19 years cared for in pediatric units: The Canadian Childhood Cancer Surveillance and Control Program. Journal of Pediatric Hematology/Oncology 2006 July; 28(7): 433-439.

Speechley KN, Barrera ME, Shaw AK, Maunsell E, Morrison HI. Quality of Life (QOL) in Childhood Cancer Survivors (age < 17): Comparison of Survivors with Population Controls. Journal of Clinical Oncology 2006 June 1; 24(16): 2536-43.

Maunsell E, Waldegger L, Barrera ME, Shaw, AK, Speechley KN. (2006) Quality of Life after Cancer during Childhood: Comparisons of Adult Survivors with Population Controls. Journal of Clinical Oncology 2006 June 1; 24(16): 2527-35.

Shaw AK, Pogany L, Speechley KN, Maunsell E, Barrera M, Mery L. Use of health care services by survivors of childhood and adolescent cancer in Canada. Cancer 2006 Apr 15; 106 (8): 1829-37.

Pogany L, Barr RD, Shaw AK, Speechley KN, Barerra M, Maunsell E. Health status in survivors of cancer in childhood and adolescence. Quality of Life Research. 2006 Feb 15(1):143-57. (+Commentary)

2005

Barrera M, Shaw AK, Speechley KN, Maunsell E, Pogany L. Educational and social late effects of childhood cancer and related clinical, personal, and familial characteristics. Cancer. 2005 Oct 15; 104(8); 1751-60.

Klein-Geltink JE, Pogany LM, Barr RD, Greenberg ML, Mery LS. Waiting times for cancer care in Canadian children: Impact of distance, clinical, and demographic factors. Pediatr Blood Cancer. 2005 Apr;44(4):318-27. (+ Editorial)

Klein-Geltink J, Shaw AK, Morrison HI, Barr RD, Greenberg ML. Use of pediatric versus adult oncology treatment centres by adolescents 15 to 19 years old: the Canadian Childhood Cancer Surveillance and Control Program. Eur J Cancer; 2005 Feb; 41: 404-410.

2004

Shaw AK, Infant-Rivard C, Morrison HI. Use of medication during pregnancy and risk of childhood leukemia (Canada). Cancer Causes Control; 2004 Nov; 15(9):931-7.

Shaw AK, Morrison I, Speechley KN, Maunsell E, Barrera ME, Schanzer D, Pogany L, Desmeules M. The Late Effects Study: Design and Subject Representativeness of a Canadian, Multi-Centre Study of Late Effects of Childhood Cancer. Chronic Dis Can 2004;25:119-126.

2002 and earlier

Luo W, Moore R, Stobart K, Morrison HI, Schanzer DL, Barr RD, Greenberg ML. The Medical Care Cost of Childhood Cancer in Manitoba, 1990-1995. Chronic Diseases in Canada 2002; 23(3), pp83-90.
http://www.phac-aspc.gc.ca/publicat/cdic-mcc/23-3/a_e.html

Speechley KN, Maunsell E, DesMeules M, Schanzer DL, Landgraf JM, Feeny DH, Barrera ME. Mutual Concurrent Validity of the Child Health Questionnaire and the Health Utility Index: An Exploratory Analysis Using Survivors of Childhood Cancer. Int. J. Cancer 1999; Suppl 12, 95-105.

Landgraf JM, Maunsell E, Speechley KN, Bullinger M, Campbell S, Abetz L, Ware JE. Canadian-French, German and UK versions of the Child Health Questionnaire: methodology and preliminary item scaling results. Quality of Life Research 1998; Jul 7(5):433-45.

Gibbons L, Mao Y, Levy IG, Miller AB. The Canadian Childhood Cancer Control Program. Can Med Assoc J 1994;151(12).