Canadian Paediatric Surveillance Program
2003 Results

Canadian Paediatric Surveillance Program - 2003 Results Report 59 Pages - (3,110 KB) in PDF Format

Table of Contents

Acknowledgements

Forward

• Federal Minister of Health, Health Canada
• Director General, Centre for Infectious Disease Prevention and Control
• President of the Canadian Paediatric Society
• CPSP Chairman

CPSP Steering Committee

CPSP Working Group

Publications in 2003

• Published papers related to studies
• Highlights published in Paediatrics & Child Health

Presentations in 2003

• National
• International

Funding

Surveillance at Work

• Overview
• Investigators' corner
• Studies timeline

Program Evaluation

CPSP Principal Investigators

Surveillance Studies in 2003

• Acute flaccid paralysis
• CHARGE association/syndrome
• Congenital rubella syndrome
• Early-onset eating disorders
• Lap-belt syndrome
• Necrotizing fasciitis (final report)
• Neonatal herpes simplex virus infection (final report)
• Neonatal hyperbilirubinemia - severe
• Prader-Willi syndrome
• Vitamin D deficiency rickets

New Studies in 2004

• Acquired demyelinating syndromes of the central nervous system
• Acute rheumatic fever
• Adverse drug reactions - serious and life-threatening
• Osteogenesis imperfecta
• Severe combined immunodeficiency

Survey Question

• Lap-belt syndrome

International Developments

• Highlights from other national paediatric surveillance units

Call for New Studies

Acknowledgements

The key strengths of the CPSP continue to be the participation of Canadian paediatricians, subspecialists and other health-care providers in the monthly collection of information on rare paediatric conditions, our principal investigators who review and analyze the data collected to provide us with knowledge and educational solutions to help children and youth around the world, and our Steering Committee members who continue to guide the program.

For their role in the verification of data collected, we thank:

• Canadian Association of Paediatric Health Centres
• Canadian Institute for Health Information
• Canadian Paediatric Decision Support Network
• IMPACT (Immunization Monitoring Program ACTive) centres
• Notifiable Diseases Reporting System, Centre for Infectious Disease Prevention and Control, Health Canada

We also gratefully acknowledge the financial support received to maintain and expand the program in order to improve the health of Canadian children and youth. A summary of supporters is found in this report (page 8).

The strong CPSP partnership between the Canadian Paediatric Society (CPS) and Health Canada's Centre for Infectious Disease Prevention and Control (CIDPC) allows the program to grow in Canada and to take a leadership role on the international scene.

A special thank you

To all who participated in the Canadian Paediatric Surveillance Program's external evaluation, thank you. With your cooperation and involvement, it was possible to provide the Expert Advisory Group (EAG) with valuable information with which to assess the merits of the program. A special thank you is extended to the EAG, chaired by Dr. Robert McMurtry, for evaluating the program to determine its strengths and weaknesses and how well it is achieving its objectives and goals.

The Steering Committee is proud of the results of the review, which stated, "The CPSP represents an important collaborative tool for surveillance, research and policy development. In this role, it was perceived as unique in Canada. In other words, it provides an important activity that would disappear in its absence, unless a much larger investment was made to replace it."

Dr. Robert McMurtry

"CPSP, a gem, a light under a bushel"

You are encouraged to read the executive summary of the evaluation results on page 14 of this report. A copy of the complete evaluation report is available through the CPSP Senior Coordinator.

Congratulations all!

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